HOW IT BEGAN
I remember the days my journey through chronic illness began two years ago. I had started a job as a chamber maid at a local hotel ( why I did this hmm not a clue, but may be explored in a separate chapter).
I started to have really sore feet, and feel very tired. My new work mates said "ah you're not work fit yet, you will be fine". Instead of getting fitter as time went on as you would expect I started getting weaker hmmmm .
Ok firstly between my husband and myself we established something wasn't right, then the merry-go-round of doctors and specialists began as did the medications still no real answers except you may have an autoimmune disease!!
In the end after a course of methotrixate I began to feel dreadfully out of breath, fatigued and very poorly. Went to doctors who promptly sent me to the hospital.
Now this is when the big bad bombshell is dropped, we can't see any evidence of an autoimmune disease however you have got heart failure mouth opens in shock!!
I was in hospital for 12 days in which time I had MRI scans Echo cardiograms the list goes on.
Soo I still coping with with shock goes searching for answers to the constant pain, enters Dr Pengilis with his diagnosis of Fibro .
So there we have it I have one illness that wont kill me but can't be cured and one that will kill me and hmm maybe if i have a transplant be sort of cured .
Now this is the beginning of my journey in a very short nutshell, and by all means not the full story. No the full story, well this is about how i came to have heart failure, how I coped with and still coping with the shock and how I am trying to live a life with my illnesses.
Hopefully my journey will be similar to yours, maybe not but I hope you will feel you have the time to peek in now and again and maybe even comment.
This is a new part of my journey trying to turn something rubbish into something that will help me and hopefully you. Also please check out my page on Facebook.
No comments:
Post a Comment